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Advocacy Groups and Government Agencies

Nursing home abuse and nursing home neglect in recent years has given rise to a wide variety of advocacy groups and government monitoring agencies.  It is important to note, however, that because of the nature of the regulating procedures for nursing homes (particularly state-by-state licensure) many advocacy groups and agencies are regional, state-wide or even local.

What follows is a brief list of advocacy groups and government agencies that may be helpful if you are concerned about nursing home abuse or neglect.  Some of these sources are limited in scope to statewide activism.  Nevertheless, each provides invaluable resources for study and a starting point for more research on the subject.

Advocacy Groups

LeadingAge — Formerly the American Association of Homes and Services for the Aging

2519 Connecticut Ave. NW
Washington, D.C. 20008

LeadingAge seeks to help individuals and their families through their member not-for-profit organizations.  There are currently 5,700 member organizations, providing services ranging from adult day care, home health, community services, senior housing, assisted living residences and nursing homes.

CANHR — California Activists for Nursing Home Reform

650 Harrison Street, 2nd Floor
San Francisco, CA 94107

California Activists for Nursing Home Reform (CANHR) is a statewide activist group founded in 1983 and currently operating as a nonprofit organization.  CANHR focuses on direct advocacy, community education, legislation and litigation.  CANHR seeks to create strong advocacy for long-term care reform and humane alternatives to institutionalization.

LTCCC — Long Term Care Community Coalition

242 West 30th Street, Suite 306
New York, NY 10001

New York-based activist group Long Term Care Community Coalition (LTCCC) was first brought together in the late 1970’s after a string of scandals in New York State involving long-term care facilities.  In 1982 the group became a permanent watchdog for the industry.  It was incorporated in 1989.  LTCCC works actively with the government to improve long-term care in the state and the country.

NCCNHR — National Citizen’s Coalition for Nursing Home Reform

1828 L Street, NW
Suite 801
Washington, DC 20036

Formed in 1975, the National Consumer Voice for Quality Long-Term Care (NCCNHR) endeavors to address such issues as inadequate staffing in nursing homes, poor working conditions, maintenance of residents’ rights, empowerment of residents, support for family members.  Furthermore, the NCCNHR addresses the results of poor care, such as bedsores, dehydration, incontinence and contracture of residents’ muscles.

Federal State and Agencies

Centers for Medicare and Medicaid Services

The federal government has assembled an extraordinary amount of information, including objective and honest ratings of nursing homes throughout the country.  The Centers for Medicare and Medicaid Services (CMS) offers a Nursing Home Compare Tool for selecting the right facility for your loved one, a list of nursing home residents’ rights, and many other unique tools for researching and understanding nursing homes and long-term care facilities.

Administration on Aging

Part of the U.S. Department of Health and Human Services, the Administration on Aging (AOA) has been given the mission of helping elderly individuals “maintain their dignity and independence in their homes and communities through comprehensive, coordinated, and cost effective systems of long-term care, and livable communities across the U.S.”

One of the programs managed by the AOA is the Long-Term Care Ombudsman Program, which helps fund and train ombudsmen at the state level to serve as advocates for nursing home patients. 

State Agencies

Each of the fifty states, Puerto Rico, and the District of Columbia have at least one agency devoted to nursing homes.  These agencies handle certification and oversight, eldercare and advocacy for the elderly.  These agencies can assist you when you are deciding which facility best meets your loved one’s needs.  They can also help when trying to resolve problems with the care your loved one is receiving.  Usually state agencies are a division of the state’s Department of Social Services or Department of Health.